Here is Dr. Buckner's response to my letter.
What a refreshing attitude she has! This is very encouraging,
and I am going to participate in her study.
I received your letter in November and read it with interest.
I am studying relapsing polychondritis, as you may have heard
from others. Presently my work is focused on understanding
the genetic and immunologic aspects of the disease. As you
know the role of diet in autoimmune diseases is an area of
much interest to patients and physicians, but little is known
in this area. I have heard several individuals with RP describe
foods that they feel contribute to their symptoms, or who have
found diet manipulation helpful. Additionally, there are scientists
who are studying the role of the digestive system in autoimmunity.
Presently, my work does not specifically address these issues.
However as I discover how and what the immune system is responding
to in RP I may be able to address these issues. If you are
interested in participating in the study that I am doing,
I would be happy to send you information on my work and how
to participate. Thank you for sharing your experience with
Jane Hoyt Buckner, M.D.
Virginia Mason Research Center